Here you can find completed surveys that can help understand the impact of the COVID-19 crisis on families and children with disabilities.
EACD COVID-19 Surveys for Families and professionals
The purpose of the survey was to gain more insight into:
- The short-term impact of the COVID-19 crisis on personal and professional practice, ability to provide urgent and non-urgent care, financial status, and the physical health and mental health of professionals and families,
- The current access to treatments and/or services, the availability of certain type of treatments/services, and the effectiveness of the currently provided treatments/services
- Ideas/strategies/innovations aiming to address the experienced problems. How are you adapting to the new situation? What can health care professionals, policy makers, and others do to mitigate the impact?
For more information click here.
COVID-19 and Special Educational Needs and Disabilities (CO-SEND)
Children with special educational needs and disabilities (SENDs) are more likely to experience social and emotional difficulties compared to their unaffected peers. The current outbreak of covid-19 presents a particularly challenging situation for some children with SENDs. The primary aims are:
- Whether and how children’s and parent’s feelings and behaviours change during the Coronavirus pandemic?
- Which factors predict these changes in children’s and parent’s feelings and behaviours?
Stakeholder Perspectives on Re-engaging with Cerebral Palsy Research Studies Following Onset of COVID-19 in the United States
The purpose of this study is to understand motivators and barriers for participating in cerebral palsy related research and considerations influencing potential participants. Participation takes approximately 20 minutes, and questions are focused on participant values as it relates to research, practical challenges they face in participating in DIFFERENT kinds of research studies, and qualitatively what motivates them to be involved.
Region: United States
2020 COVID-19 (Coronavirus) and children and young people with disability survey
Children and Young People with Disability Australia (CYDA), the national representative organisation for children and young people with disability, identified that Australia lacked a coherent national response for children and young people with disability in the context of the COVID-19 pandemic. They developed a survey to capture the impact of COVID-19 on children and young people and their families and identify unmet needs for resources and information. This process was designed to capture issues relating to COVID-19 specifically, but also to help plan for future emergency scenarios (e.g. pandemics, bushfires, floods).
COVID-19 and the reality of people with disabilities in Argentina: possibilities of complying with the considerations of the World Health Organization
The aim of this work was to know if considerations published by WHO can be fulfilled by people with disability in Argentina and if there are differences in their fulfillment between age groups.
Learn more here.
See attached pdf describing key findings in Spanish, English and Portuguese here.
Your experience with our Teletherapies
Satisfaction survey aimed at families with the purpose of knowing, based on their experience in A.E.D.I.N. – Asociación en Defensa del Infante Neurológico (Association in Defense of the Neurological Infant), how they consider teletherapy as a treatment option in rehabilitation of patients with neuromotor conditions.
Repercussions of the COVID-19 pandemic in mothers of children with congenital Zika virus syndrome
The aim of this survey was to discuss the repercussions of the COVID-19 pandemic on mothers of children with congenital Zika virus syndrome (SCZ). This study used mixed-methods, carried out with 44 mothers of children with SCZ who answered an online questionnaire between April and May 2020, who underwent thematic content analysis and descriptive statistics, with the application of the paired Student t test.
For more Information, contact us : PAULOFALCAOVALE@UFRB.EDU.BR
Member COVID-19 response
The purpose of this survey was to canvas our members on their experiences during COVID-19 on a variety of platforms from phone to e-mail.
Region: New Zealand
For more Information, contact us : firstname.lastname@example.org
Ensuring functionality among PWDs during COVID-19
Impact Assessment of COVID-19 (among aged, people with NCDS and Disabilities):
- Assess the quality, availability and accessibility of health services during COVID 19 outbreak.
- Monitoring the health and functional outcomes of COVID-19 infection among PWDs.
- Study on pattern of responses among vulnerable group.
Region: New Delhi
For more Information, contact us : email@example.com
How children experienced the pandemic
We want to understand how children talk about the quarantine and time spent at home during COVID-19, and to learn the best way to interact with children.
Challenges and alternative options of entry to practice physiotherapy education during the COVID-19 pandemic
This survey is completed to understand the challenges and alternatives of physiotherapy educational programs that students have faced and used during the COVID-19 pandemic at an international level.
Region: Global (conducted by Taiwan)
For more Information, contact us : firstname.lastname@example.org
ECHO (Enfant Confinement handicap besoins / CHILDREN LOCKDOWN DISABILITY NEEDS)
ECHO (“CHILDREN LOCKDOWN DISABILITY NEEDS”) aims at drawing a list of experiences, difficulties and needs that emerged during the lockdown for motor disabled children (with or without associated deficiencies), and their families in France.
For more Information, contact us : email@example.com
Pediatric rehabilitation care during the COVID-19 Pandemic in the Netherlands
The Dutch Academy of Childhood Disability performed an inquiry among therapists and pediatric rehabilitation physicians in The Netherlands, to provide insight in the effect of the COVID-19 pandemic on pediatric rehabilitation care in The Netherlands. In an online survey, open questions were asked about the way the governments’ lockdown and social distancing measures were interpreted, which therapies and care were considered essential, which care was continued live or using telehealth, and which new forms of care or therapy were implemented.
Region: The Netherlands
For more Information, contact us : firstname.lastname@example.org
Impact of COVID 19 on neurodevelopment in children with and without disabilities in Argentina
The aim of the survey was to learn about the experience of families with children with and without disabilities under 12 years of age in Argentina during the COVID-19 pandemic. Specifically, the impact on neurodevelopment of their children, describing the areas of development that were most affected and those that improved; and situations that have been facilitators and barriers.
For more Information, contact APDECA (Asociación de Pediatras del Desarrollo y la Conducta de Argentina) email@example.com
Experiences of students and families receiving long distance services due to COVID-19 (Experiencia de estudiantes y familias recibiendo servicios a distancia debido a la COVID-19)
We designed this survey to receive feedback from parents concerning the new way of long distance services we were now offering due to the COVID-19 pandemic We asked what they thought about the activities we were sending them to do at home, feedback on the quantity of the activities and the information being sent home, usefulness of WhatsApp for communicating, main concerns during the pandemic, how they had been affected in their family dynamics and also economically, what were their main needs.
Region: Monterrey, Mexico
Impacto de la emergencia COVID-19 en población con discapacidad intelectual y del desarrollo en España (impact of the COVID-19 emergency on population with intellectual and developmental disabilities in Spain)
Research on the perception of people with intellectual disabilities, their families, professionals and managers of organizations regarding the impact of COVID using four different questionnaires. We have done it in collaboration with Plena Inclusion España. We have a sample of: 1,378 people in total (644 people with ID; 244 family members; 418 professionals and 72 Managers).
For more information click here.
The Impact of COVID-19 Restrictions for People With Cerebral Palsy in Scotland
A survey of people in Scotland with Cerebral Palsy undertaken in 2 phases – May and September 2020 to reflect lived experience both during and after lockdown.
For more information click here.