Welcome to Global COVID-19 Childhood Disability Data Coordination: a collaborative initiative of the International Alliance of Academies of Childhood Disability

The members of the Survey Task Force working group, are launching the Global COVID-19 Childhood Disability Data Coordination project to map out data collection initiatives currently in development or launched worldwide. We are looking for surveys using quantitative and qualitative methods, or a combination of both. Specifically, surveys asking their respondents – individuals with a disability, caregivers, and/or professionals – to report directly on their own thoughts, feelings, and behaviours regarding the impact of COVID-19.

Read more here:


Click here to tell us about your survey that can be posted on our website.

COVID-19 Links to Ongoing Surveys

Here you can find ongoing surveys that can help understand the impact of the COVID-19 crisis on families and children with disabilities

COVID-19 Links to Completed Surveys

Here you can find completed surveys that can help understand the impact of the COVID-19 crisis on families and children with disabilities


Read more about our key findings here.

Similar COVID-19 Disability Data Coordination initiatives

The Canadian ASD Alliance (CASDA) is an alliance of organizations guiding Canada’s National Autism Strategy development. Initiated after COVID-19, CASDA began curating a list of surveys that people with autism and families can participate. To add your survey, please visit their website at https://www.casda.ca/covid-19-data-coordination-response/.

National Institutes of Health (NIH) Open-Access Data and Computational Resources to Address COVID-19

COVID-19 open-access data and computational resources are being provided by federal agencies, including NIH, public consortia, and private entities. These resources are freely available to researchers.


COVID-19 Clinical Research Resources

International Severe Acute Respiratory and Emerging Infections Consortium (ISARIC) has developed a portfolio of resources to accelerate outbreak research and response. The aim is to accelerate our collective understanding of COVID-19 to help improve patient care and inform public health policy.