Knowledge Hub

This well written journal article encourages the reader to reconceptualise their perceived understanding of childhood onset neurodisability using five themes: Health; Development; Parents and the Family Unit; Parenting and Life-course perspective. This is done by restructuring traditional thinking and understanding of each theme and presenting contemporary ideas that aim to provide a more holistic child-in-family-in-community approach to managing childhood-onset disability.

Perspectives in Childhood-Onset Disability: Integrating 21st-Century Concepts to Expand our Horizons

Knowledge Hub

This well written journal article encourages the reader to reconceptualise their perceived understanding of childhood onset neurodisability using five themes: Health; Development; Parents and the Family Unit; Parenting and Life-course perspective. This is done by restructuring traditional thinking and understanding of each theme and presenting contemporary ideas that aim to provide a more holistic child-in-family-in-community approach to managing childhood-onset disability.

Synopsis of resource:

The article by Rosenbaum et al. (2024) provides a comprehensive overview of how modern concepts are reshaping the understanding and management of childhood-onset disabilities. It underscores the importance of a multidisciplinary approach, integrating insights from various fields to foster better outcomes for affected children and their families. The authors advocate for a shift from traditional models to more holistic and inclusive practices, emphasizing the role of collaboration among healthcare providers, educators, and policymakers. This forward-thinking perspective aims to bridge gaps in current practices and promote a more inclusive society.It is a thought provoking piece that challenges the reader to rethink their understanding of childhood-onset disability.

Key learning outcomes

  • Consider five key themes in our field in the context of WHAT? (are our traditions)? SO WHAT? (Why does this matter? NOW WHAT? (What’s new and how can we use it?)
  • Reflect on how what we have traditionally been taught about these themes has led us to think rather ‘biomedically’
  • Consider both new ways of thinking and evidence to support them open new vistas…
Peter Rosenbaum

Authors

Peter Leon Rosenbaum is a developmental paediatrician, health services researcher, author, mentor and lecturer with a career-long interest in childhood disability, family wellbeing, and how best to support families of children with neurodisabilities. He co-founded CanChild Centre for Childhood-Onset Disability Research, now over 35 years old and connected to the world of childhood disability. CanChild’s website (see www.canchild.ca) provides a variety of free resources to colleagues and families in many languages.

Resources Free Access