Knowledge Hub

Tool to assess quality of life for children and adolescents with CP on the basis of parental and self-reports in a number of key domains.

The Cerebral Palsy Quality of Life Questionnaire

Knowledge Hub

Tool to assess quality of life for children and adolescents with CP on the basis of parental and self-reports in a number of key domains.

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Synopsis of resource:

Quality of life (QOL) refers to an individual’s perception of their wellbeing across various domains of life. The Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL –Child) and Cerebral Palsy Quality of Life Questionnaire for Adolescents (CP QOL –Teen) are condition specific QOL instruments.

These instruments are useful for evaluating interventions designed to improve the lives of children and adolescents. The CP QOL – Child was first designed to assess the QOL of children with cerebral palsy aged 4-12 years and an adolescent version, the CP QOL – Teen has recently been developed for adolescents aged 13-18 years.

Key learning outcomes

  • Areas of life children and teens with CP and their families perceive to contribute to wellbeing and quality of life.
  • Measurement of quality of life of children and teens with CP from self-report data.
  • Measurement of quality of life of children and teens with CP from parents’ perspective.

Authors

The late Professor Elizabeth Waters’ made a lasting contribution to the field of public health both nationally and internationally, fuelled by her passion and commitment to justice, equity and upholding the rights of children. One of her many projects was leading the development of the Cerebral Palsy Quality of Life Questionnaire for Children.

CPQOL-Child: E Waters, E Davis, R Boyd, D Reddihough, A Mackinnon, HK Graham, SK Lo, R Wolfe, R Stevenson, K Bjornson, E Blair, U Ravens-Sieberer.

CPQOL-Teen: E Davis, M Davern, R Boyd, D Reddihough, A Mackinnon, HK Graham.