Knowledge Hub

This is an excellent presentation about how registers can be designed to support practice based research and research can be bottom up and led by clinicians and patients.

Creating Registries for Childhood Disability Conditions Using Practice-Based Evidence Design Features

Knowledge Hub

This is an excellent presentation about how registers can be designed to support practice based research and research can be bottom up and led by clinicians and patients.

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Synopsis of resource

This material is a video of a lecture by Professor Susan Horne given at the 2017 EACD annual meeting in Amsterdam. Professor Horne begins with the results of her research into rehabilitation following stroke or brain injury, This shows that very early rehabilitation after the injury, with complex activities, is associated with better long term outcome. Professor Horne then talks about the methodology used to get to those findings. This methodology, practice based evidence, is the main subject of this lecture it’s benefits and challenges. This is explained as a bottom up approach to research. Professor Horne presents the material clearly and logically. A very interesting and well presented lecture.

Key learning outcomes

Greater understanding of:

  • Practice Based Evidence
  • How registers can be designed to support practice based evidence
  • Bottom up approach to research
Susan Horn

Author

Susan D. Horn, PhD is Professor, Health Services Innovation and Research Program, University of Utah School of Medicine. She is a statistician and health services researcher with major interest in severity of illness measurement (developed the Comprehensive Severity Index (CSI®)) and has conducted 35 multi-site practice-based evidence comparative effectiveness studies, including 4 in rehabilitation.

Lecture recorded at the 29th EACD Annual Meeting in Amsterdam on May 19,  2017.