Listening and Sharing Sessions are bringing you discussions about different topics that are arriving from new ideas and are crucial for wellbeing of children and youth living with developmental conditions.
Diagnosis or functional approach: IS THIS EVEN A SENSIBLE QUESTION
Exploring the issues with a multidimensional perspective
In the field of developmental disability, considerable debate and tension remain regarding the best approaches to thinking about how engage with and serve children with developmental challenges and their families. In many places, service eligibility is based on diagnosis. This approach puts pressure on families to get a diagnosis, and on service providers to make a diagnosis. Among the implications of this challenge are what can become a ‘diagnostic odyssey’ for many families, and the moral and ethical dilemmas for service providers to ‘make up’ a diagnosis in order to support the family to access services.
At the same time, people in our field recognize that there may be clinical, political, ethical, moral and resource implications of this dilemma, and most of us – whatever our personal views – are frequently involved in discussions and debates about this matter.
Peter Rosenbaum, Arnab Seal, Jenny Carroll and Bernadette Gillick are discussing this issue in the video below.
World CP Day 24 Hour Session
What is this 24 hour session about?
By focusing just on diagnosis, we are missing vital information which we ordinarily think about as clinicians of any sort when we are asked to work with a child and families. We have a long tradition of thinking diagnostically and functionally (or categorically). The idea of focusing just on diagnosis or function is clearly a limitation and we believe we need to expand our thinking.
This 24 hour session provides an opportunity for health professionals working in the field of childhood disability, parents and experiential experts across the globe to come together and ask one another “How can we best benefit combining two approaches (Functional and Diagnosis thinking)? What are we missing?” “(How) can we integrate and expand both approaches in order to cover topics like: bodily functions, mental wellbeing, meaning, quality of life, participating, daily functioning, psychological, social, pedagogical and spiritual aspects?”