Knowledge Hub

The talk discusses the importance, and processes, of involving families in research and building partnerships over time. It includes reference to the research cycle and how prioritization of a research question occurs.

Involving families in research and prioritizing research questions

Knowledge Hub

The talk discusses the importance, and processes, of involving families in research and building partnerships over time. It includes reference to the research cycle and how prioritization of a research question occurs.

Hits: 78

Synopsis of resource

Lecture recorded at the 29th EACD Annual Meeting in Amsterdam on May 18,  2017 The benefits and importance of working with families when completing research. Building and importance of the ‘family faculty’. The process and method of scoping for possible research questions, then discussing the process of prioritization of research questions. Importance of building partnerships over time and also having fun whilst doing research.

Key learning outcomes

  • Importance of completing research with families
  • Process of prioritizing and choosing the right research question
  • Building partnerships overtime
Christopher Morris

Author

Dr. Christopher Morris leads PenCRU, a childhood disability research group at the University of Exeter Medical School, UK. PenCRU has considerable experience in involving families of disabled children as meaningful partners in research through our Family Faculty. Activities include identifying research questions, design research projects, and disseminating the findings to various users of research findings.

Lecture recorded at the 29th EACD Annual Meeting in Amsterdam on May 18,  2017.