Knowledge Hub

This set of lecture slides provide an important summary of our current thinking around ‘health’, disability (read ability) and functioning. It explores the societal change in access to information, access to big data, models of care (paternalistic to partnership) and the opportunities/challenges they bring. It provides signposts to tools/resources how these ideas and changes can be implemented in our everyday practice. A seminal lecture/presentation for our times; a must read/see!

Developmental Disability in the 21st Century: What Should We Know, and Do – and Why?

Knowledge Hub

This set of lecture slides provide an important summary of our current thinking around ‘health’, disability (read ability) and functioning. It explores the societal change in access to information, access to big data, models of care (paternalistic to partnership) and the opportunities/challenges they bring. It provides signposts to tools/resources how these ideas and changes can be implemented in our everyday practice. A seminal lecture/presentation for our times; a must read/see!

Synopsis of resource

This talk was offered as an invited Keynote presentation at the May 2018 EACD meeting in Tbilisi, Georgia.It begins by looking back at the traditional assumptions in our field–the assumed need to address and ‘fix’ biomedical impairments that limit children’s ‘being, belonging, and becoming’. Building on the framework of the WHO’s International Classification, and our adaptation of it with ‘The F-words in Childhood Disability’, the talk offers an alternative research-based approach to child-and-family intervention. It illustrates the considerable uptake of the F-words around the world in at least 25 languages, and the embrace of these ideas by parents and program managers in many places.The talk also leaves listeners with an awareness of the myriad opportunities for Knowledge Translation of, and research about, these ideas and their further impact on the field.

Key learning outcomes

  • To introduce people to contemporary thinking about childhood disability, based on the author’s and many colleagues’ research.
  • To help people appreciate the sea change in our fields, and recognize opportunities to do things differently.
  • To hear how health services research – in partnership with families – can move the field forward.
Peter

Author

Peter Rosenbaum, M.D., FRCP (C) Professor of Pediatrics since 1984, and held a Tier 1 Canada Research Chair 2001- 2014. In 1989, Peter co-founded the award-winning CanChild Centre for Childhood Disability Research. He and CanChild have received numerous award for their work from around the world.

Peter has held > 85 research grants and contributed to > 350 peer-reviewed articles and book chapters. He has been an invited lecturer and keynote speaker in >30 countries, has worked with almost 80 graduate students, and has been a graduate supervisor or committee member at several universities.

Lecture recorded at the 30th EACD conference in Tbilisi, Georgia, May 28-31, 2018.