Build Back Better: Insights, Innovations and Opportunities

The COVID-19 pandemic brought various challenges for the daily living of children and young people with disabilities and their families, as well as for the provision of services in the paediatric habilitation field. There were positive and negative aspects to the new situations we found ourselves in. Many lessons were learned from this period, some of the positives reported, by those who normally saw children in clinics, included being able see, during online sessions, children and families in their own homes and context, seeing directly the unique characteristics of the child’s environment. The opportunity exists to take the positives from these new ways of working and incorporate them in our service delivery going forwards. Services globally are starting to do this. These Listening and Sharing sessions give the opportunity for clinicians to share their experience of rebuilding services. If we all learn from each other we truly can Build Back Better!

Peter Rosenbaum, Arnab Seal, Jenny Carroll and Eugene Rameckers are discussing this issue in the video below.

24 hour virtual Listening and Sharing sessions for World CP day 2022

Enjoy recorded sessions where health workers and families are sharing their experiences, challenges and innovations. These sessions are recorded on 6th October 2022 every hour around the globe.

Australia

Focus on Function: New Clinical Practice Guidelines for improving function in cerebral palsy

Australasian Academy of Cerebral Palsy and Developmental Medicine

Summary

Clinical practice guidelines were recently published regarding current best practice evidence to support children and young people with cerebral palsy to achieve functional goals. This session will present the guidelines and reflect on how we can implement changes into our own practice to benefit the clients we work with.

Brazil

Build back together: aprendizados para o presente e futuro

Nossa Casa Institute

Summary

We will share experiences of families, health care providers and knowledge translation actions during the COVID-19 pandemic. Such actions encourage the active participation and empowerment of families and individuals with CP.

China

Rehabilitation for all

Paediatric committee of Chinese rehabilitation medicine association

Summary

China is a Country with large populations. There is disparity in the services for people with disability especially for children .The committee has been strived to even it out. The experience will be shared in this session.

Georgia

Insights and Challenges in postCode-19 Era in childhood disabilities

Georgian Association of Child Neurology and Neurosurgery  (GACNN)

Summary

During this session we discuss importance of early detection and early intervention in children at risk of CP, with short case presentation of Infants who were assessed with general movements and HINE. Also we share the presentation on positive and negative aspects of Covid -19 on CP children during the Covid -19. Deference between the center-based rehabilitation and telehealth, with case report of young child with CP, how we are setting the goals in clinical practice in both approaches, using the ICF frame to enhance the children with CP and their families.

Germany

From computer vision to parental satisfaction – contributions from Germany

Kinderzentrum Maulbronn gGmbH

Summary

Three 5-min-pitches will address

(1) Computer vision & machine learning in early infancy: what are pitfalls for a broad screening of CP?

(2) Feeding and eating disorders from infancy to preschoolers – what are the parental views?

(3) Computer vision & home-based serious gaming at school age – do we need more activity training?

Greece

Nothing can stop us

PanHellenic Association of Adapted Activities ALMA

Summary

ALMA will discuss the challenges we faced in our work during the pandemic, the ways in which we managed the situation and our conclusions (which practices worked and which did not), as well as which of these practices will continue to be used after the end of the pandemic.

India

Build Back Better

Indian Academy of Cerebral Palsy

Summary

Panelist exploring the issues with COVID-19 and the lockdown, as well as the challenges and benefits of virtual therapy.

Poland

Robot – assisted rehabilitation in CP

Polish Association for Persons with Intellectual Disability, Polish Academy of Childhood Disability

Summary

Is robotic-assisted rehabilitation helpful in gait improvement training in children with cerebral palsy or is it just only the funny tool used for attracting the exercises? It is a question frequently asked by parents, caregivers, and medical professionals dealing with CP-children therapy. The answer will be done during the planning presentation.

Portugal

Barometer author, mother of a young adult of CP, Therapist, Woman with CP and Bord Member of an institution

Federation of Portuguese Cerebral Palsy Associations – FAPPC and São Miguel Cerebral Palsy Association – APCSM

Summary

Presentation of the Covid 19 Barometer – result of surveys of people with CP and their families, during the pandemic time. Caregiver’s perspectives. Challenges for the direct intervention of professionals. Facing Covid – the view of a person with CP (Independent living) vs Institutionalization threads and rights of people with disabilities.

Romania

Insights, Innovations, Opportunities and Challenges for children with rare diseases in Romania during COVID pandemic

Romanian Prader Willi Association (RPWA)– NoRo Center for rare diseases

Summary

During the pandemic NoRo Center had to adapt the services for children with disabilities produced by rare diseases in order to ensure continuity of care. We have provided online consultations, therapies and therapeutic education groups. We had many challenges, but we gain new knowledge that can be used in the future.

Singapore

Lessons from Singapore – Adaptation of practices for school-based services

Singapore/Rainbow Centre and Thye Hua Kwan Moral Charities

Summary

The covid-19 pandemic has prompted unprecedented adaptations in the scene of early intervention and special education in Singapore. These changes have led to a transformation in how services can be delivered in school-based settings. Join in the conversation to uncover the lessons learnt and the innovation behind the service provision.

South Africa

Building Back Better – conversations from Southern Africa

SA-ChilD

Summary

We all learnt many lessons from Covid-19 – we learnt we needed to do things differently and we learnt about the gaps (and craters!) in our services. How successful was telemedicine in a resource-constrained setting?

Join our conversation as we listen to the experiences of clinicians and parents from resource-constrained settings in South Africa and Zimbabwe and be inspired at how we can Build Back Better!

Spain

Ecological and systemic perspectives in pre-, peri- and postnatal care. Experiences from families and service providers.

Summary

The Spanish “Listening and Sharing” session will bring you a journey from different perspectives and experiences on Ecological Systems Theory. How is it being applied in the Spanish context? How can we build back a better experience from birth for the baby, families, and professionals?

Turkey

Physical Activity in Individuals with Cerebral Palsy

Hacettepe University, Faculty of Physical Therapy and Rehabilitation

Summary

We included a parent of a child with CP who founder a sport club for people with CP and a experienced physiotherapist will present

United States of America

Build Back Better: Advocacy, Research, and Treatment in Developmental Disability; Lessons Learned from the Pandemic

Northwestern University/American Academy of Cerebral Palsy and Developmental Medicine

Summary

We will share lessons learned from the pandemic in the care and research of individuals with developmental disability. In this panel we will hear from a parent, a physician, a therapist, and a researcher who will examine the lessons learned in the pandemic.